Sometimes I forget that our son is trisomic. It is easy to forget that, with itsvagaries of child of 2 years, her naughty smile and playful attitude. Gabe has aheart of gold, although it is a bit stubborn. It always happens in current to see ifher older sister goes well, when she made a drama as if it were the end of theworld. It jumps on your lap when you do not expect and it stretches her littlefingers to touch your cheek, just to say 'I love you '.
He destroys things, also. He opened the drawers, it all fall to the ground, hethrows things on the floor. When you scold, he returned his small head in theshoulder and watching you in corner, with a kind of smile sheepishly. Sometimesit helps you pick up, other times he went power to destroy other things.
He loves music, also. He began to dance at the moment even where he hears. Heabsolutely cannot resist if he hears music that pleases him, regardless if it was sador angry one second earlier: he forgets everything and starts to dance. Gabe cando music from just about everything and anything, even with the fireworks ofJuly 14.
Sometimes I forget, because Gabe is nothing more than that - it is him, Gabe.When I look in your eyes, I do not see Trisomy, I see my son, I see the littlebrother of Abi. A little boy sweet, cheerful and determined.
Sometimes I forget, and this makes things even harder to cash out whensomeone just remind me a little comely manner.
And that is what made this cashier, when she threw me this look compassionateand that she spat venom in a whisper, "I imagine that you would have liked theknowledge before he comes to the world... You know, they are tests that candetect it, nowadays. »
Shock. Horror. Pain and hatred have covered my body. The space of a moment, I have thought about jumping over the counter, grab it by the neck and thebeating without mercy. I watched him head to foot; It was not fear me, I couldbeat.
But I chose another option, instead. I made him my most beautiful smile ofpsychopath.
"It is true, ca! It is so much harder to get rid of them once they arereleased.Believe me, I've tried everything... »
BIM! Her mouth opened wide and she looked at me with round eyes, completelyshocked. I'm leaning over the counter, and I whispered it in his ear:
"You mean it is that I should kill him then that he was in my belly, and that now Ican no longer do so, it is it? For me, this is the same thing. For information, wesavionsexactement had it when I was still pregnant. He is our son now, and hewas our son before also. Never I won't let anyone to hurt one of my children,even during this time where so ridiculously considered "undoable." »
I'd forgotten that sometimes, other people do not see Gabe, they see a "trisomicchild. They see poor parents and an older sister who bear a burden. Sometimes I forget this, and then I look at them and I see the pity in their eyes, or else I hearignorant comments in their hushed whispers.
Sometimes, I forget that this is not really their fault. It's just that they don't know.
Sometimes I forget that I, too, I would have perhaps thought like them. I knewthe down's syndrome before the birth of Gabe boiled down to what I had been able to read during my nursing studies. Just enough to make me run chills on spine, imagining a child still, unable, disabled.
Sometimes I forget how the first weekend in December is important to us. Withan action such as the Telethon, we have a chance to raise awareness, to educatein this regard, to break myths and preconceived ideas that revolve around thedisease. This gives us the opportunity to show our children under another day.This gives us the chance to move forward of the simple awareness, acceptance ofthe people around. So when we go out and we are so busy through education ofus children that we forget, we don't let us put uncomfortable because of the ignorance of others.
Yes, sometimes it is easy to forget that your child suffers from down syndrome.For us, they are nothing else than Gabe, Julien, Maxime or Nelly. And this is howit should be, and this is how it will be if we continue to strive to ensure that theyare accepted, and we continue to educate people-not just in December, but everyday of the year.
0 Comments
